Heart Valve Disease: Essential Resources and Support Guide

A Comprehensive List of Resources for Patients with Heart Valve Disease

Cardiology

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Last updated: Mar 24, 2025

Medical Organizations and Information

Primary Resources

  • American Heart Association

    • Website: www.heart.org
    • Heart Valve Disease Section: heart.org/valvedisease
    • Toll-free: 1-800-AHA-USA1
  • American College of Cardiology

    • CardioSmart Patient Education: cardiosmart.org
    • Heart Valve Disease Resources: cardiosmart.org/heartvalves

Additional Support Organizations

  • Heart Valve Voice US
    • Patient advocacy organization
    • Support groups and educational resources
    • Website: heartvalvevoice-us.org

Educational Materials

Online Learning Centers

  • ValveDisease.org - Interactive learning modules
  • HeartValveJourney.com - Patient stories and experiences
  • NIH Heart Valve Disease Information Center

Mobile Apps

  • Heart Valve Disease Tracker
  • Anticoagulation Management Apps
  • Symptom Monitoring Tools

Support Services

Local Resources

  • Cardiac rehabilitation programs
  • Hospital-based support groups
  • Community health education programs

Financial Assistance

  • Heart Valve Disease Patient Assistance Fund
  • Medicare coverage information
  • Insurance navigation resources

Clinical Trial Information

  • ClinicalTrials.gov - Heart valve disease studies
  • Research match programs
  • Local hospital research departments

Emergency Resources

  • When to Seek Emergency Care
  • Local emergency contact numbers
  • Cardiac care center locations

Additional Support

  • Dietary guidelines for heart valve patients
  • Exercise recommendations
  • Medication management resources

Updated [Current Date] Contact your healthcare provider for personalized medical advice

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