Growth Disorders: Comprehensive Resource Guide

A Directory of Support Services and Information for Patients and Families

Endocrinology

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Last updated: Mar 24, 2025

Medical Organizations and Associations

Professional Organizations

  • Pediatric Endocrine Society (PES)

  • The Endocrine Society

Patient Support Organizations

  • MAGIC Foundation

    • Phone: 1-800-362-4423
    • Support for children's growth disorders
    • Financial assistance programs
  • Human Growth Foundation

    • Educational resources
    • Parent-to-parent support network

Online Educational Resources

Reliable Medical Information

  • MedlinePlus Growth Disorders
  • Mayo Clinic Growth Disorders Center
  • Cleveland Clinic Growth Center

Support Groups

  • Growth Disorder Support Forum
  • Parents of Children with Growth Disorders
  • Teen Growth Support Network

Financial Resources

Insurance and Coverage

  • Patient Assistance Programs
  • Prescription assistance options
  • Insurance appeal guidelines

Research Programs

  • Clinical trials database
  • Research participation opportunities
  • Treatment studies

Local Resources

Medical Centers

  • Pediatric endocrinology clinics
  • Growth specialists
  • Diagnostic centers

Support Services

  • Nutritional counseling
  • Psychological support
  • School accommodation assistance

Additional Resources

Educational Materials

  • Growth charts and tracking tools
  • Diet and nutrition guides
  • Treatment options overview

Emergency Information

  • Crisis hotlines
  • Emergency care guidelines
  • Urgent care locations

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