Diabetes Insipidus: Essential Resources and Support Guide

Medical Organizations & Information

Primary Resources

• National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)

  • Website: www.niddk.nih.gov
  • Phone: 1-800-860-8747
  • Comprehensive information about DI diagnosis and treatment

• Diabetes Insipidus Foundation

  • Website: www.diabetesinsipidus.org
  • Support groups and educational materials
  • Research updates and clinical trials

Patient Support Services

Support Groups

• DI Care Network
  • Online community forums
  • Monthly virtual meetings
  • Contact: [email protected]

Medical Alert Resources

• MedicAlert Foundation
  • Emergency identification jewelry
  • 24/7 emergency response service
  • Website: www.medicalert.org

Treatment Resources

Medication Assistance

• Partnership for Prescription Assistance
  • Help with medication costs
  • Website: www.pparx.org

Clinical Trial Information

• ClinicalTrials.gov
  • Current DI research studies
  • Participation opportunities

Educational Materials

Free Downloads

• DI Management Guide
• Fluid Intake Tracking Charts
• Emergency Protocol Cards

Mobile Apps

• Water Intake Trackers
• Medication Reminders
• Symptom Journals

Emergency Contacts

Keep These Numbers Handy

• Local Endocrinologist: [Space to fill in]
• Emergency Room: [Space to fill in]
• Pharmacy: [Space to fill in]

Note: URLs and contact information should be verified regularly as they may change over time.