National Organizations and Support Groups
American Brain Tumor Association (ABTA)
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Phone: 800-886-2282
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Website: www.abta.org
- Support groups, educational resources, and patient navigation services
National Brain Tumor Society (NBTS)
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Phone: 617-924-9997
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Website: www.braintumor.org
- Research updates, advocacy resources, and treatment information
Local Support Services
Medical Transportation
- American Cancer Society Road to Recovery Program
- Local medical transport services (ask your care coordinator for details)
- Medicaid transportation benefits (if eligible)
Home Care Services
- Skilled nursing care providers
- Physical therapy at home
- Occupational therapy services
- Medical equipment suppliers
Financial Resources
Medical Cost Assistance
- CancerCare (800-813-4673)
- Patient Advocate Foundation
- Hospital financial assistance programs
Prescription Assistance
- Partnership for Prescription Assistance
- NeedyMeds
- Pharmaceutical company patient assistance programs
Educational Resources
Treatment Information
- Brain tumor treatment guidelines
- Clinical trial databases
- Medication information sheets
Lifestyle Support
- Nutrition guidelines
- Exercise recommendations
- Stress management techniques
Emergency Contacts
When to Seek Immediate Care
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Neurosurgery Office: [Insert Number]
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24/7 Nurse Line: [Insert Number]
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Emergency Department: [Local ED Information]
Additional Resources
Legal Services
- Disability rights information
- Advanced directive assistance
- Medical power of attorney
Caregiver Support
- Respite care services
- Support groups for family members
- Counseling services
Please contact your healthcare team for additional resources specific to your situation.