Brain Tumor Support and Information Resources

A Comprehensive Guide for Patients and Caregivers

Oncology

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Last updated: Mar 24, 2025

National Organizations

American Brain Tumor Association (ABTA)

  • Website: www.abta.org
  • Helpline: 800-886-ABTA (2282)
  • Services: Educational materials, support groups, research updates

National Brain Tumor Society (NBTS)

  • Website: www.braintumor.org
  • Phone: 617-924-9997
  • Services: Patient navigation, advocacy, research funding

Online Support Communities

Cancer Support Community

Cancer Care

Medical Information Resources

National Cancer Institute (NCI)

  • Website: www.cancer.gov
  • Phone: 800-4-CANCER
  • Evidence-based treatment information
  • Clinical trial search tool

Financial Assistance Programs

Patient Advocate Foundation

CancerCare Co-Payment Assistance Foundation

Local Resources

Hospital Support Services

  • Social work department
  • Patient navigator program
  • Nutrition services
  • Physical/occupational therapy

Community Programs

  • Transportation assistance
  • Home health services
  • Meal delivery programs

Additional Resources

Clinical Trial Information

  • ClinicalTrials.gov
  • NCI Clinical Trial Finder
  • Brain Tumor Trials Collaborative

Educational Materials

  • Brain tumor type fact sheets
  • Treatment option guides
  • Symptom management resources

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